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Life Sciences Clinical Dataset

Real-world clinical dataset from long-term care facilities with 50+ daily data points per patient for health economics research, trial feasibility, and post-market surveillance.

Solution by PointClickCare
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Overview

The PointClickCare Life Sciences Clinical Dataset is a regulatory-grade, real-world clinical dataset drawn from long-term care facilities across the United States. It is designed for life sciences researchers and organizations seeking longitudinal, granular patient health data on the aging population, including data on epidemiology, treatment patterns, and patient outcomes.

Unlike datasets that capture only discrete events or instances of care, this dataset reflects continuous monitoring of all residents within PointClickCare Life Sciences facilities. It covers more than 10 million patients aged 65 and older over a period of more than 10 years, with over 50 data points collected per patient per day and an average long-stay length of 874 days. Because seniors are frequently underrepresented in clinical trials due to comorbidities and unique circumstances, this dataset is positioned to help fill evidence gaps for research into the aging population, which is projected to more than double by 2050.

Supported Research Applications

  • Health Economics and Outcomes Research
  • Clinical Trial Feasibility
  • Label Expansion and Changes
  • Understanding Epidemiology
  • Comparative Effectiveness
  • Post Market Surveillance

Resident Demographics

  • Age
  • Race
  • Gender
  • Sexual Orientation
  • Education Level
  • Health Literacy
  • Social Isolation

Clinical Assessments

  • Minimum Data Set (MDS)
  • Cognitive assessments (including BIMS, CPS, CFS)
  • Depression assessments (including PHQ-9)
  • Behavioral assessments (including AIMS)
  • Delirium assessments (including CAM)
  • Nursing assessments (including ADL, FS)

Visits and Stays Data

  • Post-acute short- and long-term stays
  • Hospital transfers including emergency, inpatient, and outpatient
  • Census action, status, and time data including hospital stay transitions
  • Payer information
  • Facility occupancy and size
  • Health care resource utilization

Clinical Measurements (up to daily frequency)

  • Blood pressure
  • Blood sugar
  • Temperature
  • Oxygen stats, flow rates, and PAP machines
  • Respiration
  • Pain levels
  • Height, weight, and BMI

Inpatient Data

  • ICD-10 diagnoses
  • Lab results (LOINC-coded)
  • Immunizations
  • Incidents such as falls
  • Medication orders and administration
  • Allergies

The dataset is sourced from the majority of long-term care facilities in the United States and is available to organizations across health economics and outcomes research, real-world evidence and data analytics, market access, medical affairs, clinical affairs, and academic research. Access requests are submitted directly to PointClickCare via an inquiry form.

Meta

Domain
Real-World Data & Market Intelligence
Subdomain
Patient Journey Analytics Platforms
Software type(s)
Database / Knowledge Base
Deployment type(s)
Cloud / SaaS
Industry vertical(s)
Academic / ResearchBiotechCROPharma
Development stage(s)
ClinicalPost-Market & RWE
Target user(s)
Research ScientistBioinformatician / Computational ScientistMedical Affairs ProfessionalCommercial / Market Access
Compliance standard(s)
HIPAA